Sponsored by:
Senator RAJ MUKHERJI
District 32 (Hudson)
SYNOPSIS
Requires DOH to develop and maintain central neurodegenerative disorders database.
CURRENT VERSION OF TEXT
As introduced.
An Act concerning neurodegenerative disorders and supplementing Title 26 of the Revised Statutes.
Be It Enacted by the Senate and General Assembly of the State of New Jersey:
1. a. The Department of Health shall develop and maintain a centralized neurodegenerative disorders database, which shall include, but shall not be limited to, the following disorders: amyotrophic lateral sclerosis, Huntington's Disease, Parkinson's disease, Alzheimer's disease and related disorders or other forms of dementia, and other prevalent neurodegenerative disorders, as determined by the Commissioner of Health.
b. (1) The neurodegenerative disorders database shall contain State and national statistics and other information on neurodegenerative disorders that pertain to: the cause and nature of neurodegenerative disorders, including environmental and hereditary factors; diagnostic procedures; symptoms; treatment; and life expectancy.
(2) The neurodegenerative disorders database shall contain information concerning: the status and quality of the State's professional workforce; a list of current providers and treatment centers that specialize in the diagnosis and treatment of neurodegenerative disorders; and any other information deemed relevant by the Commissioner of Health.
c. The neurodegenerative disorders database shall be made available to the public through a centralized location on the Internet website of the Department of Health, and shall be formatted to perform informational searches that yield results for one or more neurodegenerative disorders.
2. The Commissioner of Health shall adopt rules and regulations, in accordance with the “Administrative Procedure Act,” P.L.1968, c.410 (C.52:14B-1 et seq.), as are necessary to effectuate the provisions of this act.
3. This act shall take effect immediately.
STATEMENT
This bill requires the Department of Health (department) to develop and maintain a central neurodegenerative disorders database.
Under the bill, the department is to develop and maintain a centralized neurodegenerative disorders database, which is to include, but not be limited to, the following disorders: amyotrophic lateral sclerosis, Huntington's Disease, Parkinson's disease, Alzheimer's disease and related disorders or other forms of dementia, and other prevalent neurodegenerative disorders, as determined by the Commissioner of Health.
The neurodegenerative disorders database is to contain State and national statistics and other information on neurodegenerative disorders that pertain to: the cause and nature of neurodegenerative disorders, including environmental and hereditary factors; diagnostic procedures; symptoms; treatment; and life expectancy.
Under the bill, the neurodegenerative disorders database is to also contain information concerning: the status and quality of the State's professional workforce; a list of current providers and treatment centers that specialize in the diagnosis and treatment of neurodegenerative disorders; and any other information deemed relevant by the Commissioner of Health.
Finally, the neurodegenerative disorders database is to be made available to the public through a centralized location on the Internet website of the department, and is to be formatted to perform informational searches that yield results for one or more neurodegenerative disorders.